The pain we suffer and the nonsympathy we receive

Why is it that many people treat our illness as it doesn't exist or that it has no importance. Endometriosis is a real disease and causes great discomfort as well as interruption of our daily lives. We most unite and educate the world of this illness and how a cure needs to be found but, more importantly the cause in order for a correct cure to be found. I believe a nonprofit organization should be put in place for this and I may just be the one to start it. If you have views on a nonprofit organization being started for our illness please post. Thank you for your ideas and suggestions.